Celebrating the immensely important and often unrecognised role that family caregivers play in caring for those with incontinence issues.

Millions of people around the world suffer from incontinence.

Urinary incontinence or bladder incontinence is the involuntary release of urine. There are many different types including stress incontinence, urge incontinence and overactive bladder syndrome.

For people who suffer from urinary incontinence, life can be challenging, but their situation is eased by the support of selfless carers like you. If you are one of those special people looking after a parent, grandparent, aunt or uncle, or even a good friend, this site is for you. We’ve built it to help you navigate the challenges of caring for a loved one suffering from incontinence.

Don’t be afraid to share your experiences as a carer, it’s so important to break the stigma associated with bladder weakness.

World Continence Week

17 June - 23 June

Did you know that over 400 million people globally have some sort of continence related issue that affects their lives? We’ll all eventually encounter incontinence either through personal experience or caring for a loved one with incontinence.  

World Continence Week (WCW) is an initiative that aims to raise awareness for continence across the globe to improve health, wellbeing and quality of life. This global event initiated by the International Continence Society seeks to inspire research, discussion and multidisciplinary approaches to incontinence treatment.  

Since 2016 the World Federation of Incontinence Patients has managed World Continence Week and produces information and materials to support the event. You can read more about WCW and this year’s themes here.  

The eleventh WCW will take place between the 17th and 23rd of June this year.  

What the doctors have to say

"Urinary incontinence just like any other distressing situation, how much you suffer is not always about how many nappies or pads you change per day but it is directly linked with how you think about the situation. Help is always available. If the urinary incontinence problem is big enough to bother you it is not small enough to ignore telling your family Doctor."
Dr Dakalo Muvahlo Urogynaecology at Groote Schuur Hospital
"For carers; we cannot give what we do not have, so be sure to take good care of yourself. Open yourself as a channel for unlimited divine light, energy, love and compassion. Include yourself as recipient of those gifts. Let us make this challenging journey memorable for all involved and waste no opportunity to be kind, gentle and caring. Let us pay the care forward, for we never know when we might need it ourselves."
Dr Hannetjie Edeling Counselling Psychologist
"Incontinence, of both bladder and bowel function, is one of the most devastating consequences of an injury or disease process to the spinal cord, causing Paraplegia or Quadriplegia. The role of a caregiver in such circumstances is absolutely vital. Ensuring that the bladder and bowel are working regularly is critical to the long-term health of a patient."
 Dr V S Wilson MB BS DCH(RCP) Netcare Rehabilitation Hospital
"The role of a caregiver caring for patients suffering from incontinence is very important. If the patient is unable to take care of their own needs, it falls to the caregiver. This is not always an easy task and can be a daily struggle for caregivers. Caregivers must be patient, kind and diligent to make sure that the patient is clean, and that skin integrity is maintained. Incontinence can’t always be cured, but it can be managed and the patient’s self-esteem preserved."
Dr Margaret Fockema Medical practitioner specialising in incontinence, Pelvic & Urotherapy Institute Sunninghill Hospital
"The role of the family caregiver of a patient with incontinence has its own unique challenges. Daily managing and caring of incontinence as well as planning trips will reduce embarrassment and stress. Recognising early potential problems and using the correct incontinence products and good hygiene, upholds the patient’s dignity at all times. A healthy diet and adequate fluid intake, correctly prescribed medication, good bladder and bowel behaviour and encouraging incontinence-communication will identify their needs and reduce stress levels."
Lizelle Grindell Applied Electro & Psychophysiologist Pelvic & Urotherapy Institute Sunninghill Hospital

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